An article by Lucy Nichol that appeared in The Metro on Sunday 20th May 2018.
There’s definitely a lack of understanding around the idea of psychosis. In fact, the word itself carries certain connotations that many find unhelpful and often distressing.
But we don’t have to use that word if it doesn’t seem to fit with the experience that friends or loved ones are going through. And we don’t have to feel frightened if somebody we know is hearing voices.
Whilst hearing voices is a relatively common experience in childhood adolescence, affecting around 1 in 5 11-13 year olds, 8% of older teens and 23% of CAMHS clients aged 12-16, it remains an experience that can be difficult to speak about.
Whilst there is a growing awareness of the prevalence of self-harm, it remains a challenging area for many who are trying to support those who use it as a survival strategy and/or means of expressing difficult feelings.
This workshop will provide a space for anyone who is involved in supporting people who self-harm to develop a greater understanding of the experience, their own reactions and ways of talking with someone about their self-harm without fearing making matters worse. Continue reading “Working with Self Harm: A Fresh Approach (December – Kent)”
This week I was one of three contributors with personal experience of things that often get called ‘psychosis’ (hearing voices, seeing visions and paranoia) on the BBC Documentary ‘Why Did I Go Mad?’. The title, suggested by one of Jacqui Dillon’s voices, was deliberately provocative in order to challenge what we mean by madness and – ultimately – show that there is a great deal of sense and context in those experiences often dismissed as ‘mad’. The challenge is that we don’t always get to hear those stories.
Whilst the documentary provided a whistlestop tour around a range of ideas and approaches, it was great to show that it can be OK to talk to voices (via the inherently relational ‘Talking with Voices’ approach or the hi-tec Avatar Therapy). More than this, it showed that a range of life experiences can be bound up with our experience of voices, visions, distressing beliefs or psychosis. This may not sound groundbreaking to many who read my blog, yet for a mainstream BBC programme – it was.
In the coming weeks I’ll write more about the process of filming it and my reflections on the varying reactions I have witnessed. For now, I’ll simply share the documentary itself (which can be viewed on iPlayer this month) and a range of reviews so you can judge for yourself.
Also – i’m running a 1 day event with the amazing Jacqui Dillon in July entitled: Making Sense of Madness – An emancipatory approach. If you want to find out more, see: www.madness-london.eventbrite.co.uk.
The following are some of the TV, radio and magazine appearances Jacqui and I engaged in around the documentary.
BBC Breakfast
Jacqui and I headed up to Media City to appear on BBC Breakfast. An interesting experience, it was good to think about people hearing a fresh approach to hearing voices whilst eating their cornflakes. The main message – voices can have meaning, and people can find many ways of living with them.
Radio 5Live
Jacqui and I woke up early on Tuesday 2 May and spoke with 5Live hosts Rachel Burden and Nicky Campbell about hearing voices.
Radio BBC London
Luke Mendham (episode producer) and I spoke about the documentary, psychosis and hearing voices on BBC London’s Drivetime.
This unique, one day event, featuring Jacqui Dillon and Rai Waddingham (recently featured on BBC Horizon: Why Did I Go Mad?), explores experiences often dismissed as symptoms of serious mental illness: voices, visions, paranoia, unusual beliefs and altered states, and reframes them as understandable human responses to adversity.
Drawing from personal and professional experiences of madness, healing and recovery, combined with emerging innovative research findings, Jacqui and Rai present an emancipatory approach to understanding and working with distressing experiences that prioritises respect, personal meaning, self-determination and liberation.
Exploring factors that can contribute to and shape distress
Alternatives to diagnosis – moving beyond the illness model
Respectful ways of helping people in distress
Strategies to survive and thrive
This day is suitable for:
Anyone interested in understanding more about madness, creativity and the complex spectrum of human experience
Those involved in supporting another human beinga – whether this is as a friend, ally, family member, colleague, mental health professional, teacher, therapist, social worker, voluntary sector worker, manager or spiritual advisor
All those with lived experience of madness and distress
Fees:
Unwaged: £10
Low Waged Self-Funding: £50
Voluntary Sector & Self Funding: £90
Statutory & Commercial: £125
Please get in touch if you’re in a difficult financial position – we may be able to help.
What’s it like to battle with a dozen people talking inside your head? Rachel Waddingham tells her remarkable story.
By Moya Sarner, published in Radio Times
Rachel Waddingham sits cross-legged on the sofa and, with the enthusiasm of a children’s TV presenter, talks about travelling the world, the Masters degree she’s doing in psychology and her part-time job in the NHS working with people in crisis.
She doesn’t strike you as someone who has been labelled schizophrenic.
Aged 39 and married to Joel, Rachel says: “My life feels mostly awesome. I get stunned by it sometimes, all the little mosaic pieces. I still struggle a lot, and I’ve got a lot to understand about the things I go through. It’s not like I’m super-wise – but maybe, one day, I will be.” Continue reading “Radio Times: The Voices in My Head”
In recent years I have taken a step into research – consulting on other people’s studies (e.g. Hearing the Voice at Durham University), taking part in research committees (e.g. Open Dialogue, Intervoice) and undertaking my own research.
An independent documentary by Jonathan Balazs looking at the Hearing Voices movement & the schizophrenia label
On Thursday 27th April from 6.30pm at Kennedy Lecture Theatre (UCL Institute of Child Health), I’ll be joining a panel to discuss a screening of ‘They Heard Voices’ … a documentary I contributed to.
This screening is hosted by Mind in Camden, and the following information is taken from their site. If you want to find out more, check out their eventbrite page.
An “illness” with no “cure”, the label schizophrenia has persisted for over a century. This film offers multiple perspectives. Is schizophrenia hard science? Or an arbitrary, catch-all term with no real meaning? The film presents a series of wide-ranging interviews with voice hearers, medical historians, anthropologists and psychiatrists from Britain and America, presenting different people’s views side-by-side. The result is a tapestry of contrasting colours.
Over the past three years there has been significant development of the Open Dialogue approach from Western Lapland in the NHS and in public mental health services internationally. Open Dialogue UK has been working for the past four years to further this development, and 10 NHS trusts are now represented on one of their two training programmes (largely teams from Early Intervention in Psychosis and Crisis/Home Treatment services).
Over the course of 6 days in March 2017, I’ll be travelling alongside a variety of NHS professionals and Nick Putman (founder of Open Dialogue UK) across the UK to introduce the work we’re doing to develop the Open Dialogue approach. All of these practitioners are participating in one of the Open Dialogue UK training programmes. The following professions will be represented at this event, either in person, or via video footage: psychiatry, psychology, psychotherapy, nursing, social work and peer support. Continue reading “‘Open Dialogue in the NHS’ Seminars in March”
Hi. My name's Rachel (Rai). I hear voices, see visions and have a whole host of unusual experiences that have, at times, overwhelmed me. Once labelled as 'severely & enduringly mentally ill', I am now an independent trainer specialising in innovative ways of supporting people who struggle with extreme states (including ‘psychosis’, ‘dissociation’ and post traumatic reactions).
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